Kayla: Kayla is doing ok today. They tried to insert a new PICC line last night and it doesn't seem that it was working, so they were going to do an xray and see how it looked and might have to try another location. The PICC lines scare me because they go up near (or in...I forget) the heart so you don't want that to be misplaced or messed up. I was so happy because she had finally gotten the thing removed and now they had to place another one and this one looks like it may need to be moved so that would be a 3rd one...poor baby! I spoke with the doctor and although it looks like Kayla is improving, the real test will be when they start her back on food again. Sometimes NEC can cause a restriction in the bowels that won't show up until after you start trying to feed them again...so it will be a slow process trying to get her started back on food. She is halfway through the waiting period, another 5 days to go before they start her back on foods. Kayla was also moved back to an isolette (incubator) today which is another step forward.
Kamryn: I think Kamryn is making up problems so she can stall and wait on sissy to catch up. Really. She actually has been doing well...except today when I had my first try at feeding her from a bottle. WOW. That was an ordeal. I have to restrict how many sucks she takes from the bottle because she gets so excited about it that she forgets to breathe. That alone is stressful. So we had her on the nasal canula to give her more oxygen and to remind her to breathe...only the nurse didn't realize that someone had turned the O2 off...so poor thing wasn't getting any supplemental oxygen when we thought she was. About halfway through her feeding, her heart rate dropped and her O2 sats dropped and her whole face went ashen/dusky gray. I almost fainted because I knew she wasn't breathing. Fortunately, the nurse was there and realized what was going on and quickly got the oxygen turned on and we got her breathing again. I was so upset because I felt like I had done something wrong while trying to feed her, but she recovered well and was ready for more food so I had to get back on the horse and try again too. Talk about stressful!!!! I get so upset just hearing about her apnea episodes let alone being there and holding her for one...I don't want to ever go through that again. I don't think my ticker can take it!! Here are some pics of Kamryn from today that Kiko took with his camera phone...
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Hang in there Kristen. I know this is all so scary for you. We are praying for you and your girls. I will pray tonight that you will get peace in your heart and a restful nights sleep. Plus I am always praying for those precious little girls to get healthy so they can come home. I can't wait to see them.
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