Another delay...

Well, last night we got Kayla all settled into her new home at TCH Level II NICU. They were unable to feed her last night because they had planned to do her surgery today. They also had a really hard time getting an IV put in because her veins are so shot. This morning they put an NG tube in to try and feed her some, but she (of course) managed to pull it out (can't say I didn't warn them). When we got there this morning, I was told the surgeon would be by at noon...at about 3 pm, the nurse called her and I was told they weren't going to do the surgery today. Instead, the doctors basically wanted to see how bad her reflux was for themselves before perfoming the surgery instead of relying on the other TWO hospitals accounts. Which of course means putting her in PAIN to see how bad it is. I wasn't happy. But I'm tired of fighting. Some people believe that they can just change her formula or change her meds...well, two other hospitals have tried different formulas and all the meds known and still she is in pain. I don't know how long this is going to go on...but basically they want to see how she does this weekend and decide from there what to do next...

So we wait...again...