It seems like I'm always posting bad news about Kayla. Before I get to that though, I should say she is doing FABULOUS, SOOOO Smart, Beautiful smile, loving, huggy, everything I could ever want my daughter to be! Unfortunately, she has had some setbacks over her short three years with us, but hopefully nothing a little surgery and some prayers can't fix. After complaining for a few months that her legs were really bothering her at night, I decided to go ahead and have her tested to see if she was having nerve damage or nerve issues from the Tethered Spinal Cord. It turns out she had an abnormal EMG, showing that at even at rest, her nerves continued to fire long after they should have stopped. That combined with the tethered cord, has led the doctor to decide to do the Untethering surgery. We decided to wait till January and get past Christmas and their 3rd birthday.
Then, last week Kayla started really complaining about these strange pains in her face and head...she'd been complaining about her eye and sinus area hurting which I chalked up to allergies...but then she started saying her ear was hurting...and all were on her left side. Then she started saying her head was hurting in the back in addition to the other pains and then her tongue and mouth. It was just really weird pains and no fevers, congestion...nothing to indicate that she was sick. So her pediatrician called the neurologist and they both agreed this was not normal and decided to schedule her for a more complete MRI of the spine and brain to try and rule out any issues with her brain. The hope is that it is just the tethered spinal cord, pulling on her brain stem during growth spurts causing all the pain she has been having. I will keep my prayers going that nothing more serious is found.
So anyway, that is the latest...we are looking forward to an exciting Christmas, now that the girls know who Santa is and all :). Then their birthday is two weeks later! Hard to believe they will be THREE!!!! ACK!!! I will work on getting a photo slideshow up soon!! Bare with me!
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