The last week has been pretty rough for little Kayla. First, she started having reflux issues about 10 days ago. I thought it was because she was at the end of her bottle of medication and it wasn't as strong as before. Then she started running a fever. Bloodwork showed an infection. They were unable to run a culture for a urinalysis (don't ask). The Dr prescribed some antibiotics, but her fevers lasted through the weekend, sometimes spiking every 3-4 hours. She started having worse reflux from the antibiotics I think and she started refusing the bottle, screaming her head off every time we tried to feed her. I would sneak in her bottles while she was sleeping and after she had some tylenol as it seemed to be the only time she would eat. Now her fevers are gone, but the reflux is much worse, she screams so loud its bone chilling and I feel every ounce of pain in her body in mine. I wish I could reach inside and calm her little tummy but all I can do is hold her and rock her and pray the pain will stop. I've started using tylenol as a pain reliever right now until the antibiotics (which we stopped early last night) are out of her system and her reflux medicine can hopefully do its job.
She has an appointment with a NEW (and hopefully better) GI specialist on Thursday. I pray that this Dr will listen to my concerns and not dismiss them like the last doctor did. The last Dr insisted that Kayla is just a "fussy baby" and didn't have reflux. I refuse to believe that when I'm the one rocking her and listening to her screams and feeling her nails claw into my skin from the pain, not the Dr. She had a great period of calmness and was doing so much better until the last week or so where it's like we have regressed back to where she was when she was in the NICU. Please pray that she gets some relief and that she starts to feel better soon.
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4 comments:
Poor Kayla! It must be so hard to have to hold her and watch her in pain and not be able to do anything. I really hope her new Doc is good and helps her out. My neighbor's baby had really bad reflux problems - so much so that they actually considered he may have "failure" to thrive. It was horrible. One doctor change, new ideas, new med and he is absolutely healthy and happy (and growing!).
Thanks for the comments on my blog. I was actually looking at u/s's online and realized that mine kind of looks like a sac for identicals, huh? Either way, I'll do the best I can...but how scary.
Why up to this point are you delaying the insertion of her peg tube then or NG tube (if you are scared of surgery?). This is just temporary until such time that her GI Reflux settles down. Please, please, if this is the only way, then by all means just try it so that she will not be in so much pain, she will be able to gain some weight and everyone else at home like you and Kiko, will not be suffering as well.
Ofie - She was actually doing a lot better for about six weeks so the Dr's thought we could get by without the tube, it's only in the last week or so that she has started having issues and we haven't been able to get in to see a GI Dr until tomorrow (been waiting for two months to get in to this doctor). The tube will be discussed for sure!
Kristen,
I so hope that Kayla feels better. The pictures are absolutely adorable BTW!
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